Family & Community Camps

The importance of our camps for children and families cannot be underestimated. At these camps, children connect with others going through the same challenges and form life-long friendships with others who understand what it’s like to live with an incurable chronic condition.   Check out this great video showing you just how powerful the weekend can be! 

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Women bleed too survey

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care settings? Survey closing 8 April 2026

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