The real-world PROBE study 2023 is now available!
You may have done the PROBE survey in 2019. This is a new round of the survey which will compare results now to 2019, which was before new treatments were widely available in Australia.
CLICK HERE TO COMPLETE THE SURVEY
Click here for more details on the HFA website.
The PROBE study allows people with haemophilia to report their haemophilia severity, treatment history and the impact of haemophilia on their daily life. I compares their answers to people in their community who do not have a bleeding disorder.
Australis needs to collect equal numbers of surveys from:
- adults WITH haemophilia/carry the gene
- adults WITHOUT a bleeding disorder ( family/ partner/friends)
