PROBE Study 2023

November 22, 2023

The real-world PROBE study 2023 is now available!
You may have done the PROBE survey in 2019. This is a new round of the survey which will compare results now to 2019, which was before new treatments were widely available in Australia.

CLICK HERE TO COMPLETE THE SURVEY

Click here for more details on the HFA website.

The PROBE study allows people with haemophilia to report their haemophilia severity, treatment history and the impact of haemophilia on their daily life. I compares their answers to people in their community who do not have a bleeding disorder.

Australis needs to collect equal numbers of surveys from:

adults WITH haemophilia/carry the gene
adults WITHOUT a bleeding disorder ( family/ partner/friends)

Latest stories

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had the acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Claire speaking at the 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

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Haemophilia Foundation WA

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Haemophilia Foundation Western Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.