References

Adapted From:

Haemophilia. Rev. edn. Melbourne: HFA, 2023 2.5MB

Living with mild haemophilia: a guide. Melbourne: HFA, 2011 2.95MB

Sources:

Australian Bleeding Disorders Registry. Annual Report 2021-22. Canberra: National Blood Authority, 2023. [PDF, 1.7MB]

Australian Haemophilia Centre Directors’ Organisation. Guidelines for the management of haemophilia in Australia. Canberra: National Blood Authority, 2016.

Dunkley S, Curtin JA, Marren AJ et al. Updated Australian consensus statement on management of inherited bleeding disorders in pregnancy MJA 2019; 210(7); 326-332.

Hermans C, Kulkarni R. Women with bleeding disorders. Haemophilia. 2018;24(Suppl. 6):29-36.

World Federation of Hemophilia. Guidelines for the management of hemophilia. 3rd edn. Haemophilia 2020; 26(Suppl. 6): 1-158.

Some sections in this publication were originally published by the World Federation of Hemophilia (WFH) and have been adapted with permission. The WFH is not responsible for any inaccuracies in content different from the content of the original English editions.

REVIEWERS

Many thanks to the HFA Women with Bleeding Disorders Consumer Review Panel and the Mild Haemophilia Health Professional Review Panel for their suggestions on topics and content to include.

This resource was reviewed by

Bleeding disorder community representatives from HFA Haemophilia Consumer Review Group (individuals not named for privacy reasons).

Australian Haemophilia Centre Directors’ Organisation: Dr Janice Chamberlain, Dr Liane Khoo.
Australia and New Zealand Haemophilia Psychosocial Group: Kathryn Body, Jane Portnoy.
Australia and New Zealand Physiotherapy Haemophilia Group: Cameron Cramey, Alison Morris.
Australian Haemophilia Nurses’ Group: Jaime Chase, Alex Klever, Stephen Matthews, Robyn Shoemark.
Haemophilia Foundation Australia: Sharon Caris, Suzanne O’Callaghan.

We are also grateful to Clinical A/Prof Kristi Jones, Senior Staff Specialist in Clinical Genetics, The Children’s Hospital at Westmead, Sydney, and Melbourne Genomics for their suggestions and advice.