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Telling others

Telling others about bleeding disorders


Information to help with considering some of the issues about telling others (disclosure). It looks at some of the situations where disclosure might come up – with friends, family, new partners, school, work and health workers. It also talks about when you do and don't have to disclose and how to protect your rights and your privacy. Includes tips and personal stories. 


Download the booklet PDF 6.2MB

Read the booklet online (ISSUU)



Tips for telling others

How do you prepare to tell others about your bleeding disorder? This section gives tips on how to get ready. It looks at why you might tell some people and why you might wait to tell others.

Download the PDF 622KB

Telling friends and family

This section deals with the issues in telling friends and family about your bleeding disorder. How will they react? What if family members have haemophilia, VWD or a rare clotting factor deficiency? What if they need to be tested too? It includes personal stories.

Download the PDF 1.2MB

Telling daughters

When and how to talk to your daughter about her bleeding disorder can be a common question for parents. Might she carry the gene? Does she need to have testing? What is a good time? How do you have the conversation? This section covers these sensitive issues and includes experiences and tips from parents.

Download the PDF  1.1MB

Telling a new partner

How do you know if, when and how to tell a new partner about your bleeding disorder? This section is a frank discussion about these questions, with practical advice and suggestions from women with bleeding disorders from their experience.

 Download the PDF 832KB

Telling your partner's family

Are you finding the thought of telling your partner's family challenging? This section considers the types of situations that might occur and the benefits of including your partner's family as well as ways of dealing with their reactions. There are practical tips and comments from women based on their experience.

Download the PDF  514KB

Telling work

This section looks at the pros and cons of disclosing your bleeding disorder in your workplace – when are you required to disclose, why you might choose to tell your employer or others in your workplace, or not, and how to prepare. Includes personal stories and tips from women with bleeding disorders.

Download the PDF  915KB

Telling your daughter's school and carers

This section deals with the issues of telling your daughter's school and carers about her bleeding disorder, emergency plans and the pros and cons of her telling school friends. It covers child care, babysitters and sports coaches. It includes tips from parents.

Download the PDF 740KB

Telling health workers

Bleeding disorders are rare. What should you tell the health workers who provide your care about your bleeding disorder – your GP, surgeon, dentist, other specialists, nurses, physiotherapists, naturopath and other health care practitioners? This section outlines some strategies and tips.

Download the PDF 336KB

What does the law say about disclosure?

When are you required to disclose your bleeding disorder? This section covers the situations where you might be required to disclose a health condition if asked, including some employers, insurance, superannuation and when travelling.

Download the PDF  841KB

More information

This section explains where to access more information. It also gives the references and contributors to the booklet.

Download the PDF  240KB

November 2018 edition


Date last reviewed: 5 December 2018

Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information. This information may be printed or photocopied for educational purposes.

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