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Items tagged 'pauline'

Dr Michiel Coppens is coming to Australia and we want your questions for a special 'Ask Me Anything' interview about gene therapy.
Jenny shares her story of how she discovered she had the acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder. 
My name is Perry. I have von Willebrand disease type 2a. I'm in my 70s, and I didn't get diagnosed until I was in my late 50s. I live with the disease and I would like to talk about that.
Zev, Mike and David have severe haemophilia. They talk about their strategies and attitudes to life that help them be resilient and live well.
Zev and Mike have severe haemophilia and don't let their bleeding disorder stop them from enjoying life. They explain their goals for the future and what they do to stay active and maintain their independence.
Belinda spoke with HFA about her journey to tackle life independently with factor X (10) deficiency.
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