Items tagged 'Personal stories'

Dawn Rotellini shares her experience being diagnosed, and why it is so important to advocate for women and girls with bleeding disorders. She also gives her top three tips for other women and girls advocating for themselves.
Shauna, Lauren, Sal, Bel and Debbie all share what they wish they'd been able to tell their younger selves when seeking a diagnosis for their bleeding disorder.
Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life
Dom shares his experience of receiving gene therapy treatment for haemophilia A
Neil shares his experience of living with severe-presenting haemophilia A, and how he continues to live well as he gets older
Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B
Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD
Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis
Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others
Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life
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