Items tagged 'Women & girls'

Women bleed too survey

5 March 2026

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care settings? Survey closing 8 April 2026

International Women’s Day 2026

5 March 2026

8 March is International Women's Day. Help us balance the scales - let's raise awareness about bleeding disorders testing and diagnosis for women and girls

Shauna Adams – managing type 3 VWD

19 July 2023

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Haemophilia – when your daughters bleed too

19 July 2023

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

Haemophilia – do you catch it?

19 July 2023

An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My…

Susie ~ Disclosure and telling others

19 July 2023

Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type…

Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia

19 July 2023

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…

Jane’s story – genetic testing for haemophilia

19 July 2023

One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find…

Shauna – sharing her life experience living with a bleeding disorder

19 July 2023

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…