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Items tagged 'parents-partners-carers'

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and…

To celebrate Bleeding Disorders Awareness Week HFA launched this digital movie to showcase Overcoming Challenges of a Bleeding Disorder. 

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

“Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,…

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My…

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