women – Haemophilia Foundation WA

Living with Glanzmann thrombasthenia

28 February 2024

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Haemophilia – when your daughters bleed too

19 July 2023

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

Haemophilia – do you catch it?

19 July 2023

An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My…

Susie ~ Disclosure and telling others

19 July 2023

Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type…

Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia

19 July 2023

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…

Jane’s story – genetic testing for haemophilia

19 July 2023

One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find…

Haemophilia – all in the family

19 July 2023

Meet two sisters, Julia and Rebecca. Their father Len has haemophilia. Between the sisters they have four sons, all toddlers – and…

Items tagged 'women'