News & Stories TJ’s path to independence with VWD 27 April 2026 Boys, Parents & families, Personal stories, Von Willebrand disease VWD Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD Read more
News & Stories VWD: Your voice matters – Sophie’s story 7 April 2026 Family Planning and Pregnancy, Personal stories, Von Willebrand disease, Women & girls Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others Read more
News & Stories Simoni and Javonte – growing up with a rare bleeding disorder 26 February 2026 Growing up with a bleeding disorder, Haemophilia, Personal stories, Von Willebrand disease, Young people interview Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia Read more
News & Stories November 2025 Contact 19 November 2025 Bleeding disorders, Get involved, New treatments, Personal stories, Research, Von Willebrand disease Connection & Peer Support, haemophilia Read more
News & Stories Shauna Adams – managing type 3 VWD 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today…. Read more
News & Stories VWD – all in the family 19 July 2023 Personal stories, Von Willebrand disease Living with VWD “Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,… Read more
News & Stories VWD – Down the generations 19 July 2023 Personal stories, Von Willebrand disease Living with VWD Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years… Read more
News & Stories Living life actively with VWD 19 July 2023 Personal stories, Rare bleeding disorders, Von Willebrand disease Living with VWD, Rare Disease Day Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He… Read more
News & Stories Susie – living with type 1 von Willebrand disorder 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD, Women I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this… Read more
News & Stories Susie ~ Disclosure and telling others 19 July 2023 Employment, Personal stories, Telling others, Von Willebrand disease, Women & girls Women Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type… Read more