News & Stories Telling daughters: Zev’s story 26 August 2025 Growing up with a bleeding disorder, Haemophilia, Parents & families, Personal stories 'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia Read more
News & Stories Hopes for the Future 4 April 2024 Growing up with a bleeding disorder, Newly diagnosed, Parents & families, Personal stories haemophilia Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation. Read more
News & Stories Poppa and Roman share a special bond 19 July 2023 Haemophilia, Parents & families, Personal stories Parents and families Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much…. Read more
News & Stories Living like a Swede 19 July 2023 Haemophilia, Parents & families, Personal stories Parents and families Amanda (Mindi) Palm is an Australian community member and blogger who moved to Sweden for a few years. She explains… Read more
News & Stories Ben – a father’s perspective 19 July 2023 Haemophilia, Parents & families, Personal stories Parents and families Ben and Kylie have a son, Ryder aged 4 with severe haemophilia A. Being the father of a small boy with… Read more
News & Stories Accessing treatment – Leah’s story 19 July 2023 Girls, Haemophilia, Parents & families, Personal stories, Treatment & care Parents and families What does access to the latest evolution of haemophilia treatments mean for a family? Leah shares her experience about new… Read more
News & Stories Haemophilia – all in the family 19 July 2023 Newly diagnosed, Parents & families, Personal stories, Women & girls Newly diagnosed, Women Meet two sisters, Julia and Rebecca. Their father Len has haemophilia. Between the sisters they have four sons, all toddlers – and… Read more
